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Registry




The redesign of the ESID Registry

A summary explaining the development and design of the new ESID Registry

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Registry WP - News@ESID Fall 2012

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General information

Information for anyone interested in the ESID database.

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New ESID Registry

This section contains information on the new ESID Registry which is currently being designed and programmed.

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Information for users

Documentation guidelines, questionnaires and further important documents and forms for registered users of the ESID Database.

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Registry Steering Committee

The ESID Registry Steering Committee was founded in February 2012 in order to shape the further development of the ESID Online Database.

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Patient consent forms

Before entering patient data into the ESID Database you have to obtain an informed patient consent. Patient consent forms containing information on the database are available here in many languages.

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Studies

Information on studies using the ESID Database and the data access and publication guidelines.
Last updated on April 17, 2013.

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Publications

This section contains the Registry publication rules and offers a list of all publications based on data from the ESID Online Database for Primary Immunodeficiencies.

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Frequently Asked Questions (FAQ)

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Other patient registries / databases

This section contains links to other national or disease-specific registries on PID.

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