Registry
A summary explaining the development and design of the new ESID Registry
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Information for anyone interested in the ESID database.
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This section contains information on the new ESID Registry which is currently being designed and programmed.
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Documentation guidelines, questionnaires and further important documents and forms for registered users of the ESID Database.
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The ESID Registry Steering Committee was founded in February 2012 in order to shape the further development of the ESID Online Database.
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Before entering patient data into the ESID Database you have to obtain an informed patient consent. Patient consent forms containing information on the database are available here in many languages.
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Information on studies using the ESID Database and the data access and publication guidelines.
Last updated on April 17, 2013.
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This section contains the Registry publication rules and offers a list of all publications based on data from the ESID Online Database for Primary Immunodeficiencies.
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This section contains links to other national or disease-specific registries on PID.
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