Information for anyone interested in the ESID database.
The ESID Online Database is run from University Medical Center Freiburg, Germany.
Postal address:
Dr. Gerhard Kindle
University Medical Center Freiburg
Centre of Chronic Immunodeficiency (CCI)
UFK, Hugstetter Str. 55
79106 Freiburg
Germany
Phone: +49-761-270-34450
Email: registry@esid.org
ESID Database Information Leaflet (96k)This ESID Database leaflet contains general introductory information on the database and includes the contracts necessary for becoming a documenting centre and patient consents in English.
(Last update: April 15, 2010)
Database agreement (48k)This agreement needs to be submitted ESID by new documenting centres.
Password application (40k)This password application needs to be submitted to ESID, one application per user. The form needs to be signed by the user and the head of the documenting centre.
ESID Database Disease Table (18k)This list shows all diseases and genetic defects in the ESID Database catalogued by main categories and sub categories.
(Last update: Apr 26, 2012)
If you would like to learn more about the ESID registry we have set up a TEST version for you to look at and enter test patients.
Please go to the following page:
| ESID Registry (test version) |
Then choose one subregistry. The ones marked in light blue contain a disease specific subregistry, while the others only contain the core dataset and core laboratory.
* enter the following test user name: test
* enter the password: start
You can either have a look at existing (test) patients by clicking on "Show all patients" and then selecting one. Then you can click on the different categories on the left side (core dataset, core laboratory etc.)
Or you can create new (fictitious) patients.
The steering committess are responsible for deciding on the structure of the subregistries in
the ESID Online database. If you are interested in contributing to the design of a specific
subregistry please contact the head of that steering committee. If a steering committee does
not yet exist for the subregistry you are interested in, please contact the ESID database team
at registry@esid.org.
