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Registry


Other patient registries / databases

This section contains links to other national or disease-specific registries on PID.

Spanish national PID registry
The Spanish national registry for PID (REDIP) collects data independently of the ESID Database, but there is close collaboration and inclusion of Spanish data into the ESID Database on a regular basis.

Spanish national [...] - Image
German PID Registry
Like many other national registries, the German registry on PID uses the ESID Database for collecting its data.

Like many other national registries, the German registry on PID uses the ESID Database for collecting its data.
UK PID Registry
The UK registry for PID collects data on a dedicated server in London, using the software of the ESID Database.

UK PID Registy - Image
Italian Primary Immunodeficiency Network IPINET
The link to this site is now available with recommendations for diagnosis and treatment of PID in both English and Italian.

Italian primary [...] - Image
Eurofever Registry
This is the international registry on autoinflammatory disorders. While this group of diseases is also classified as PID, the Eurofever Registry provides a more specific approach
to collect information on the clinical presentation, outcome and response to treatment of patients affected by the major autoinflammatory diseases.

This is the international registry on autoinflammatory disorders. While this group of diseases is also classified as PID, the Eurofever Registry provides a more specific approach
to collect information on the clinical presentation, outcome and response to treatment of patients affected by the major autoinflammatory diseases.
German AID Registry
This is the German national registry on autoinflammatory disorders (AID). While this group of diseases is also classified as PID, the AID Registry provides a more specific approach. It also collaborates with the international Eurofever registry.

This is the German national registry on autoinflammatory disorders (AID). While this group of diseases is also classified as PID, the AID Registry provides a more specific approach. It also collaborates with the international Eurofever registry.
Iranian registry on PID
The Iranian PID registry is run independent of the ESID Database.

 

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