Registry Working Party

READ-study: Retrospective Evaluation of patients with Agammaglobulinemia Diagnosis

Retrospective analysis of X-linked agammaglobulinemia (XLA) and autosomal recessive agammaglobulinemia (ARA) patients: Does early diagnosis and treatment result in substantial health gain?

Principal investigators
Dr. M. van der Burg
Associate Professor Primary Immunodeficiencies
Department of Pediatrics – Laboratory for Immunology
Leiden University Medical Center (LUMC)
Leiden, the Netherlands

Dr. M. Pac, MD, PhD
Children’s Memorial Health Institute (CMHI)
Dept. of Immunology
Warsaw, Poland

Data from the ESID-Registry has been extracted and provided to the research group after approval by the respective documenting centres.