Registry Working Party
Studies
Home/ Working Parties/ Registry Working Party/ Studies
Information on ongoing studies using the ESID Registry Database.
For completed studies please refer to the list of Registry publications.
If you want to propose a study to the ESID Registry, please use the following Research Proposal Form:
unPAD Study (Unclassified Antibody Deficiency Study)
Already > 3,200 level 1 + level 2 forms completed for the unPAD study
We thank everyone for this incredible result so far.
All of you who have not yet started your participation, please reconsider and join this very large cohort of hypogammaglobulinemia patients (unclassified PAD + CVID as controls).
Study on Hyper-immunoglobulin E syndrome (HIES) due to dominant-negative STAT3 mutations
Centres that have fully registered eligible patients in the ESID-registry, have already been contacted directly and asked for approval to use the documented data.
Data has been extracted from ESID-R and provided to the study team. Analysis pending (01/2024).
CHH-Study: Risk factors for mortality in cartilage-hair hypoplasia
Risk factors for mortality in cartilage-hair hypoplasia
Data has been extracted and provided to the study team. Analysis completed and manuscript submitted (12/2023)
« Previous 1 2