Clinical Working Party

Clinical WP - Newsletter April 2018

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by Andrew Gennery

Clinical Working Party

The clinical guidelines writing continues slowly – please contact me if you wish to be involved. 

We plan to publish these as ESID and ERN-RITA endorsed guidelines, and to have them available on the ESID website.

Current projects:

  • Consensus statement on diagnosis and management of GLILD in CVID (Klaus Warnatz: )
  • Consensus statement on diagnosis and management of CGD (Siobhan Burns + Andy Gennery:    )
  •  Malignancy in PID - workshop (with IEWP + iBMF) (Andy Gennery: )
  • Complement Disorders (Stephen Jolles;

Additional upcoming topics include:
Vaccination of the immunocompromised
Secondary Immunodeficiency

No further progress has been made on the ESID Library of clinical images, freely available to all ESID members for use in teaching and publications – again, please contact Andy Gennery if you would like to lead on this project.

A joint CWP/IEWP Thymic workshop is planned for September 2018 – further details will follow. 

Markus Seidel is leading a project on outcome of patients with LRBA deficiency – both those who have been transplanted and those who have not – contact him if you have data you wish to include:

The Clinical Working Party Steering Committee

  • Dr. Andy Gennery – UK (Chair)
  • Dr. Stephen Jolles – UK (Secretary)
  • Professor Raffaele Badolato – Italy
  • Professor Klaus Warnatz - Germany
  • Dr. Fabian Hauck - Germany
  • Professor Anna Sediva –Czech Republic
  • Professor Carlo Agostini – Italy
  • Dr. Despina Moshous - France
  • Professor Ewa Bernatowska - Poland
  • Professor Tadej Avcin - Slovenia
  • Dr. Siobhan Burns – UK
  • Professor Pere Soler Palacin - Spain
  • Dr. Filomeen Haerynck – Belgium
  • Professor Luigi Notarangelo – (CIS representative)
  • Professor Antonio Condino – (LASID representative)
  • Mrs Jose Drabwell – (IPOPI representative)
  • Ms Carla Duff – (INGID representative)

How to participate

The clinical WP meets during the biennial ESID meetings. Any ESID member clinician can participate and propose trials to the Chair of the clinical WP to be placed on the ESID website. Additionally, we will be running stand alone focused meetings to further the aims of the CWP and ESID.